tag:blogger.com,1999:blog-178999393048722515.post7908974745940229899..comments2024-01-07T16:08:16.305+00:00Comments on Past the Point of No Return: Get involved!Torhttp://www.blogger.com/profile/16037224044391745374noreply@blogger.comBlogger29125tag:blogger.com,1999:blog-178999393048722515.post-59497913478289770072010-11-07T19:16:50.896+00:002010-11-07T19:16:50.896+00:00Hiya Tor, you persuaded me to sign up to the donor...Hiya Tor, you persuaded me to sign up to the donor list, just done it now! should have done it ages ago.<br /><br />You probably know by now, but you should be so proud of what you've achieved, how many people can say they did so much good in terms of raising awareness etc? Best of luck, for someone with so much spirit I think things will turn out OK for you! xJ Finchnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-37035183277177367172010-10-28T21:47:44.143+01:002010-10-28T21:47:44.143+01:00Your courage and fight is so inspirational, I am a...Your courage and fight is so inspirational, I am a student nurse currently searching for my specialty and I am so inspired by what I have read about you and your life. It is so important that people become aware of the struggles that people face when they are in need of a transplant and how much organ donation can mean to so many people. Every day I will hope that you and so many others have the strength to keep fighting and that luck will come your way, and that I can become the greatest nurse I can to deliver the best possible care to people like you xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-54593487168292286842010-10-27T02:33:10.050+01:002010-10-27T02:33:10.050+01:00Hey Tor, I just saw your BBC story that a friend l...Hey Tor, I just saw your BBC story that a friend linked me. GOOD LUCK with finding a donor match really soon! A few of my friends have CF so I love to hear good stories about CF patients fighting for life.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-45749478915214799122010-10-26T01:11:54.758+01:002010-10-26T01:11:54.758+01:00Keep that strength going, I'm sure God will an...Keep that strength going, I'm sure God will answer your prayers real soon. All the very best!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-59099413505476245692010-10-25T15:08:06.399+01:002010-10-25T15:08:06.399+01:00YEAH!!! Write a book, I'd buy it in a heartbea...YEAH!!! Write a book, I'd buy it in a heartbeat....seriously tho...look into it :) xxxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-23799587089708678962010-10-25T14:09:12.251+01:002010-10-25T14:09:12.251+01:00Keep fightning! Wishing you all the best! // Lisa,...Keep fightning! Wishing you all the best! // Lisa, 29 with CF , SwedenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-61214370976054372412010-10-25T13:58:17.324+01:002010-10-25T13:58:17.324+01:00http://ladyclara.blogspot.com/2010/10/i-have-no-en...http://ladyclara.blogspot.com/2010/10/i-have-no-energy-no-enthusiasm-and-no.htmlAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-64563473834798872010-10-24T22:01:02.239+01:002010-10-24T22:01:02.239+01:00Just stopping by to say you are incredible. That i...Just stopping by to say you are incredible. That is all :) xxxTinypoppethttps://www.blogger.com/profile/18264261421802702883noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-59512272076687829772010-10-24T14:52:01.824+01:002010-10-24T14:52:01.824+01:00Just wanted to say - thank you for highlighting or...Just wanted to say - thank you for highlighting organ donation and to wish you all the best and strength during your wait. I am one of the lucky ones - I am 14 years post transplant, still have CF but my transplant transformed my life. My gratitude to the donors family is unexpressible, but I value every day still. My husband and I live on our narrowboat and travel the country. We have a page about organ donation on our site and I blog about our journeys. www.nbepiphany.co.uk God bless and I hope the wait is not too long now.Fionahttp://www.nbepiphany.co.uknoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-36065712645336146122010-10-24T10:56:25.364+01:002010-10-24T10:56:25.364+01:00Hi Tor,
I work as a theatre nurse in one of the c...Hi Tor,<br /><br />I work as a theatre nurse in one of the centres in the UK that undertakes heart and lung transplantation(not at your centre sadly!). I because of me jon, have a massive interest in increasing awareness of organ donation. Reading your blog has been a hugely interesting and inspirational insight into the lives of people waiting on the transplant list that before I have only been able to imagine. I often only see a transplant patient at that moment in the anaesthetic room where they are about to be put under and I think people being able to hear your experiences really shows the true bravery you and these other people go through. I now intenet to be a regular reader of your blog (thanks bbc!) and I wish you all the best with all your awareness work and hope that soon you get that call where you finally end up in that anaesthetic room! Take care xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-28857673967841927632010-10-24T09:43:10.619+01:002010-10-24T09:43:10.619+01:00Read the BBC news article and have posted a link t...Read the BBC news article and have posted a link to your blog and the registration form on my facebook page. I hope your phonecall comes soon. Juliet O'Cjuehttps://www.blogger.com/profile/11385953093714687010noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-72858788739127156132010-10-24T01:12:56.156+01:002010-10-24T01:12:56.156+01:00thank-you for making me finally sign up to being a...thank-you for making me finally sign up to being an organ donor!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-9137059043519393112010-10-24T00:41:26.852+01:002010-10-24T00:41:26.852+01:00Hey Tor,
just a headsup from a fellow CFer! I saw...Hey Tor,<br /><br />just a headsup from a fellow CFer! I saw the article randomly on the BBC site. Well done for this blog, it's a great space for you to express something about CF, life and your thoughts. My thoughts and prayers are with you (and of course that you get the transplant).<br /><br />You're inspiring me to nag everyone about getting on the donor list...<br /><br />All best,<br /><br />Becky Taylor xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-62859060807610325112010-10-24T00:24:24.764+01:002010-10-24T00:24:24.764+01:00Good luck to you, I really hope you get that call....Good luck to you, I really hope you get that call. I did get the call when I was 11 for kidney transplant - its enabled me to live a full life, do a chemistry PhD and I'm now happilly married! I could never have imagined it all to turn out so well. I hope and pray you get the lung transplant soon.<br />Best wishes,<br /><br />RichAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-51280253242717386402010-10-23T23:04:37.390+01:002010-10-23T23:04:37.390+01:00Like so many others I just found your blog after r...Like so many others I just found your blog after reading the article on the bbc site today. I'm also twenty-three and after reading the article I've spent the day thinking about how much I take my health for granted. I'm on the donor register but I am going to make sure I bug friends and family now to make sure they sign up to. I will keep in touch with your blog and hope desperately for good news soon. <br />Best Wishes.xPhillnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-55405664849239824792010-10-23T22:01:08.447+01:002010-10-23T22:01:08.447+01:00Good luck, stay strong! You are an incredible indi...Good luck, stay strong! You are an incredible individual.Forshnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-72960215523643425012010-10-23T21:18:20.299+01:002010-10-23T21:18:20.299+01:00Good luck to you - I have been on the register for...Good luck to you - I have been on the register for years and would urge everyone to do the same. My heart goes out to you; I have sadly seen for myself how debilitating CF can be, and I wish you that a donor be found really soon. You are an inspiration, and the people around you are blessed to have you as a friend. CarolinAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-34639681287866466072010-10-23T21:14:43.464+01:002010-10-23T21:14:43.464+01:00Also followed the link from the BBC. Was very move...Also followed the link from the BBC. Was very moved by your story and I sincerely hope you receive a transplant soon. I'm on the list, it's something I believe in very strongly, precisely because of people like yourself. <br /><br />Take care xmojobanananoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-59927692431189205842010-10-23T20:19:23.697+01:002010-10-23T20:19:23.697+01:00I really hope you get a transplant soon. All the ...I really hope you get a transplant soon. All the best sweety.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-18090023296118992992010-10-23T19:35:48.808+01:002010-10-23T19:35:48.808+01:00Yes, I followed the link from the BBC feature - he...Yes, I followed the link from the BBC feature - hello, Victoria. I can only imagine your life right now and you write so well. Of course blogging and tweeting are important to you - it will be a wonderful day when you let the world know a transplant is happening for you.<br /><br />I cannot go on the list as I have Multiple Sclerosis. My husband has no thyroid following cancer.<br /><br />BUT every day is a new one and we live one at a time. I will think of you - and many like you - often, and follow your blog posts and tweets. God Bless you. Take care - smile a moment and think "what else can I do!"SDCraftshttps://www.blogger.com/profile/09651374870477025304noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-44209850747524971812010-10-23T18:54:37.126+01:002010-10-23T18:54:37.126+01:00I think your story, which I read on the BBC, must ...I think your story, which I read on the BBC, must have hit me during a momentary failure of my rant-suppressant organ.<br /><br />http://simplypeachy.livejournal.com/186372.html<br /><br />Let's see if shaming my friends doesn't get at least one of them to sign up :->Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-60192414327606231912010-10-23T17:15:42.890+01:002010-10-23T17:15:42.890+01:00Keep going! Wishing you all the best.Keep going! Wishing you all the best.Mark Iversonhttps://www.blogger.com/profile/02898989140075138851noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-24484965524234469812010-10-23T17:13:54.694+01:002010-10-23T17:13:54.694+01:00From a Victoria who's had a transplant to a Vi...From a Victoria who's had a transplant to a Victoria who's waiting for one, I'd like to wish you all the best for your journey and hope the waiting isn't too long for you. I will be forever thankful to my donor and his family, who made the decisions that they did. Organ donation is such an important cause. To anyone who's still undecided about signing up - go and do it. Keep fighting xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-47856273016493391002010-10-23T16:55:52.885+01:002010-10-23T16:55:52.885+01:00Dear Tor,
I love the way you write and express yo...Dear Tor,<br /><br />I love the way you write and express yourself- why not write a book? I would buy it.<br />Such courage you have...and I admire you greatly. I am already on the register and hope with all my heart that you get the help that you need. Stay positive!<br />warm regards from Valerie Oxford in Surrey.Unknownhttps://www.blogger.com/profile/10006919451569710241noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-51369376659596161642010-10-23T16:41:37.195+01:002010-10-23T16:41:37.195+01:00Hi Tor,
I'm not on the organ donor register b...Hi Tor,<br /><br />I'm not on the organ donor register but it is something I've talked with my family about and we all agree it's something we all should be on if the worst happens. <br /><br />I'm sure there are a lot of people who feel the same way but just haven't signed up or if they have signed up haven't discussed their intention with their relatives.<br /><br />So after reading your story I'm off to sign up and will be telling my relatives I've done so.<br /><br />Good luck!Anonymousnoreply@blogger.com