tag:blogger.com,1999:blog-178999393048722515.post5822280369081225038..comments2024-01-07T16:08:16.305+00:00Comments on Past the Point of No Return: Questions Questions Questions....(hopefully!)Torhttp://www.blogger.com/profile/16037224044391745374noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-178999393048722515.post-6568045200079714212009-11-26T23:17:26.980+00:002009-11-26T23:17:26.980+00:00Ok if you don't mind a question from someone n...Ok if you don't mind a question from someone new here goes... I'm a life long wheelchair user and I was find it surprising what people new to chairs make of it. So what surprised you most about using a wheelchair when you started? Also, because I love to read and ask everyone this Do you like to read and if so what's a book you recommend as great to read?Emmahttps://www.blogger.com/profile/08965647190492385781noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-19616747550453747652009-11-24T17:29:10.038+00:002009-11-24T17:29:10.038+00:00Thanks for such an honest and poignant Guardian in...Thanks for such an honest and poignant Guardian interview. You've encouraged me to sign up for a donor card for the first time.<br /><br />Question: what are the things which make you happiest?<br /><br />Thanks again,<br /><br />ArianeArianehttps://www.blogger.com/profile/13041813039450128936noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-66923523672067939602009-11-22T20:53:15.705+00:002009-11-22T20:53:15.705+00:00i am happy to find you doing well...and i am so so...i am happy to find you doing well...and i am so sorry about the false alarm. i know it is way over the 10 day marker, but i have a question. Have you ever concidered comming to the US for your transplant? is this even an option?<br />never stopped praying,<br />LauraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-15919557444909489512009-11-16T13:41:40.300+00:002009-11-16T13:41:40.300+00:00Do you ever encounter difficulties with wheelchair...Do you ever encounter difficulties with wheelchair access in public? Based on personal experiences, what recommendations would you offer to make life easier for wheelchair users of all ages? Thank you.Effienoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-78941163181038441352009-11-16T13:29:05.552+00:002009-11-16T13:29:05.552+00:00Do you ever feel like giving up on life?Do you ever feel like giving up on life?Davidnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-37405319722049235382009-11-15T20:35:25.958+00:002009-11-15T20:35:25.958+00:00Hi
I have just seen this through Ben Shepherd on t...Hi<br />I have just seen this through Ben Shepherd on twitter.<br />I also love all musical theatre, apart from Phantom, which other show would be your fav?<br />Stay brave and hopeful you are a truly wonderful person<br />xxxsamhttps://www.blogger.com/profile/12627088471595181082noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-38753350440858924902009-11-14T18:54:30.583+00:002009-11-14T18:54:30.583+00:00Hi Tor
Duncan Bannatyne suggested I follow you on...Hi Tor<br /><br />Duncan Bannatyne suggested I follow you on Twitter and pleased I have. My nearly 16 year old son also has health problems and will need heart surgery. He is very negative with life at moment especially as every job he wants to do he won't be allowed to do, even after his surgery Just wondered what tips you could offer him regarding staying positive as you seem so inspirational.<br /><br />Hope all your dreams come true.kentprivateeyenoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-62409692017127146042009-11-14T18:32:32.372+00:002009-11-14T18:32:32.372+00:00Hi
I have a 19 year old brother who also has CF a...Hi<br /><br />I have a 19 year old brother who also has CF and I think everyone should go out there and get a donor card right now.......you really can save someones life!<br /><br />Take care of yourself!jonesey1975https://www.blogger.com/profile/13721533650471874369noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-70988239135104947562009-11-13T14:38:43.296+00:002009-11-13T14:38:43.296+00:00Hi Tor
I am planning a post on my blog about Orga...Hi Tor<br /><br />I am planning a post on my blog about Organ Donation and the importance of being on the register. Would it be okay if I placed a link to your blog on the post?<br /><br />Best wishes, Angela xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-37409933202520028112009-11-09T20:21:25.327+00:002009-11-09T20:21:25.327+00:00Do you ever get p****d off when you get referred t...Do you ever get p****d off when you get referred to as a Cfer or in the gang, some reason it always yanks me chain!?<br /><br />I gota start IV's tomorrow and feeling sorry for myself too.<br />Chin up x xKimberly Toogoodhttps://www.blogger.com/profile/10847348567521110473noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-67094043831195605222009-11-09T10:52:37.342+00:002009-11-09T10:52:37.342+00:00Hi Tor,
Just wondering if you have ever considered...Hi Tor,<br />Just wondering if you have ever considered expanding your blog idea into a fully blown autobiography? You could write a brilliant book, makes loads of money for CF, bring transplant concept to a much wider audience. As you know so many famous people now I am sure someone could point you in the right direction to have it published. There is a brilliant Hollies track called 'All I Need Is The Air That I Breathe' which if nothing else is a great working title, as is 'Third Time Lucky'. So how about writng a book then????????? xxx<br />love APBAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-65676524182535680182009-11-09T01:39:03.496+00:002009-11-09T01:39:03.496+00:00Have you had a lot of trouble with pain and/or ple...Have you had a lot of trouble with pain and/or pleursy? I've had pain in my lungs for awhile and never really realized how painful lung disease can be. So I was just wondering what your experiences with that were and how you manage it.Jesshttps://www.blogger.com/profile/08191778309873176164noreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-2777067838098839222009-11-08T13:26:58.069+00:002009-11-08T13:26:58.069+00:00At what age were you diagnosed and what are you st...At what age were you diagnosed and what are you studying at Uni ??<br /><br />I think you are a very brave young lady to be so positive in getting on with things, when a lot of people in the same boat would probably just lie down and give up <br /><br />I'm sure you'll get your transplant soon - they do say 3rd time lucky, so everything crossed for youCathyKnoreply@blogger.comtag:blogger.com,1999:blog-178999393048722515.post-4952144682553831932009-11-08T00:29:08.439+00:002009-11-08T00:29:08.439+00:00Hi
I was just wondering what the hardest part of ...Hi<br /><br />I was just wondering what the hardest part of all this has been? Is it the false alarms and the false hope, or the times when nothing is happening? <br /><br />Thoughts are with you, now as always.Anonymousnoreply@blogger.com