It's been a bit of a tough week since I last posted, nothing major but just the annoying little things that work together to wear you down a bit. I've still been having a lot of back pain and also sciatic pain in my hip and leg which is very wearing. I hate taking painkillers everyday but also refuse to sit in pain all day so I've been trying to take as and when I need but without suffering too long.
My body also seems to hae made the radical decision that it doesn't need any sleep, I don't think it's thought this through very throughly. This week has been very bad for me sleeping and I have regularly been awake at 4am which as you can imagine doesn't make me a particularly happy bunny. It has amazed me that my body is so weakened by lack of sleep. Folowing a very bad night not only am I exhausted and over tired but left feeling pretty unsteady and weak generally, it's much harder to breathe and get through the day. I'm really tired when I get into bed and it's a job to get up/move at all but despite being so physically drained my head just won't go to sleep. It's not even that I'm stressed or going over things which has been problematic in the past, I lie there feeling relaxed but 3 hours later I'm still lying there without having slept. I've tried all the obvious tricks but its still very hit and miss so if there isn't an improvement over the weekend I may have to ask for some help from my CF team on Monday when coincidentally I'm at clinic. Not keen on the idea of sleeping tablets if I'm honest so stuck in a bit of a dead end.
I mentioned last time that I have recently done an interview for the Sunday Times and I can now tell you that it will be in the paper this Sunday (21st). Please buy a copy as I particularly enjoyed this interview as it gives me the chance to talk about my wonderful mum and for you to read about my wait for transplant from a different perspective. Also should mention that unless you are registered (for a fee) with the Sunday Times website you wont be able to read the article online so if you want to read don't forget to buy your copy! I will see what i can do about getting a copy (possibly scanned) onto the awareness section but making no promises.
Will update again soon to let you know how clinic goes on Monday.