BB bus

Hello lovelies, 

I've got a couple of posts floating round in my head but thought this was a nice one to write while battling some nasty side effects of my new pain killers, so here we go. 

Last week was my birthday (big 30 is next year, eek!) and I wasn't really sure what I wanted to do for it. I've been struggling energy wise with my air boot and crutches and wasn't really sure if I even wanted to do anything. Luckily I have good people around me to sort me out! 
My friend Claire and I met up the week before, not specifically for my birthday but I'm counting it anyway. We went to Balans in Soho for drinks, and lunch and it was completely delicious. A really lovely place and everything was excellent. I would highly recommend! We then went on to the cinema, which I never really do but definitely need to start going to more. In all a lovely day with fabulous company. 

My friend Pippa suggested we book up to do something. I am a huge afternoon tea fan and had been wanting to try this particular one for ages. The BB's bakery is located in Covent Garden but they also offer an amazing afternoon tea tour on a London bus! The idea is simple but brilliant, you are served afternoon tea on specialist converted Routemaster bus while being driven round London on a 90 minute tour. 

It was a gorgeous sunny day which made it even nicer. We were picked up just off of Trafalgar Square and welcomed aboard the bus (how awesome is this bus?!)

The staff, Bastien and Jean-Philippe, were amazing, so friendly and on their game. As you know I am now gluten free as much as possible and this has been a bit disappointing on other teas so I was a bit worried. I needn't have been, I didn't feel in anyway left out in what I had, as soon as I boarded they confirmed I was gluten free and on being seated went through exactly what I could eat. I felt confident because they were so in control. It was also really easy to book online and choose your dietary requirements without it being a big deal. Excellent!

We were served tea, coffee or hot chocolate in travel mugs to avoid spills and began the tour taking in Big Ben, the London Eye, London parks, and lots of landmarks. The food was delicious, they offer to give you a doggy bag to take away at the end of the tour...  But we are everything so it wasn't necessary! Nothing was too sweet or stodgy, the savouries were lovely really tasty, and the patisserie divine. We were also served scones with individual cream and jam about halfway through. 

We were also give a bottle of orange juice and offered water too which was a nice touch. We ate on mismatched China plates but everything else was personalised with the BB's distinctive style which I enjoyed as it tied everything together. 

We also had a little book on our table which told you about the bakery, the tour route and a bit of information about the landmarks. It was seriously a really relaxed, enjoyable day and I loved it even more than I thought I would. I also managed to get some decent photos as we went round.

would highly recommend it as a treat and am definitely going to go and visit the bakery as well as book in for the special tour of the Christmas lights, literally all my Christmasses come at once!!! 

I think I'll leave it there for today and tell you about my actual birthday in another blog. 

Bye for now! 


My Bucket List

Right, so as promised here is the wish list. Some are more important to me than others but all things I'd like to do big or small. I've been reading/watching stuff about the law of attraction and not only that but just general positive thinking and imagining the life you want. And basically it can't hurt so I'm putting these things that have lived in my head out there into the world! 
I will probably add to the list, again, suggestions welcome but will also cross off too and update you maybe at the end of the year. Got it? Right lets go! 

1) To perform in Londons The Phantom of the Opera. If I had to give up the chance of everything else on this list in order to do this I probably would. I realise that while performing terrifies me, it is literally the happiest I ever feel too. Phantom as I've explained before means more than I can explain to me, in short this is the dream that has always got me through the hardest times of my life. It is always there. I'm actually getting emotional so yes, ultimate goal. 

2) In addendum to this, one of the happiest weeks of my life was when I did work experience at Les Miserables. I felt for the first time I truly belonged there. So work experience/shadowing on any west end shows. Being in any west end shows or spending a little time with some of my musical theatre icons who can share their experiences and tips. 

3) To continue learning so more drama based courses. Most appealing at the moment are an accent course and a stage combat course (despite the shattery bones and bruises like a peach!).

4) Again, mentioned him here before, but John Owen Jones is my favourite singer and actor. His voice is sublime. To duet with him would be out of this world but also makes me feel physically sick with nerves!

5) Run (complete) the London marathon. Yes really.

6) To visit the Globe Theatre.

7) To visit Portabello Rd Market.

8) visit the Sky Garden bar.

9) Afternoon tea at the Athenaeum. 

10) Buy flowers at Colombia Rd flower market.

11) pillow and secret cinemas

12) Brighton for a weekend.

13) To go to New York.

14) See a Broadway show.

15) visit the Broadway Cares market as it literally looks like my heaven.

16) Visit Italy: Rome, Vienna, Murano, Venice. 

17) Water taxi in Venice.

18) Go to the Easter market in Austria.

19) German Chistmas market.

20) go to Sardinia.

21) Ride on a motorbike.

22) Ride the Orient Express on New Year's Eve. My friend did this is looked amazing!

23) find a special someone. 

24)Leave a lock on the love bridge in Paris for my donor. 

25) Stay in an overwater bungalow.

26) make a difference, a real difference to someone's life. 
27) go to Wales.

28) visit Ireland.
29) Visit Scotland.

30) Return to Florida for my 30th next year. 

31) Watch the changing of the guard, did it as a kid but would appreciate it now.

32) To visit the set of Once Upon A Time, my new obsession. Or to meet Robert Carlyle who is amazing! 

33) to see my lung function reach more than 3 litres, it currently sits at around 2.7 x

So that's it for now but always ready to hear new suggestions! 


Update and putting it out there

Hello gang! 

I'm sorry for the lack of posts, I haven't abandoned the blog again I promise! I've tried to write a couple of posts but they just didn't really want to be written so I'm giving them a miss for the time being.
Anyway, my pain is still not sorted as latest painkillers literally have no effect on my pain....at all. Good news is that I went to a clinic appointment and they are very pleased with me from a lung point of view so I'm not back (hopefully) for 6 months when it will be my 5 year anniversary with new lungs! YES 5 WHOLE YEARS! 
However the slightly crap news is, that I have potentially broken my foot again 😒 there is no emoticon to display my disgust at this. I'm at Fracture clinic on Thursday so will find out what's going on then but in the meantime I'm on crutches and in an air boot. The crutches and extra weight of the boot are zapping my energy completely and making me more hurty. Not impressed at all.

Anyway as I'm writing this my idea of the blog post is changing so I'm going with it guys going with it! 
There have been a few things lately that have been making me feel a bit odd. As I mentioned last time, there is a real sense of wanting to get on with life and do things but without any structure, knowledge or plan of what I'm trying to achieve or how to achieve it.
I've lost a couple of friends, there are a lot of CF and transplant friends struggling and one in particular who really has an impact on me. Once again it appeared at the forefront of my mind that this second chance, this gift could disappear tomorrow. I could get rejection, an infection, pneumonia, cancer, and that would be the potential start of the end. 
I feel very much caught between going to achieve and rush out to experience everything, while not always feeling up to it, depression, anxiety, pain and fatigue levels hampering me or my appetite for foot breaking sodding things up. 
But after being incapacitated for a little bit again, I'm determined to start focusing on some good things. This weekend despite the foot and need to rest, seriously it exhausts me completely getting mobile now, I still managed to keep the plans I had as difficult as it was. 

So basically after all that, what I came on to do is to write a bucket list. An updated bucket list of things I want to do and see and experience. Feel free to chuck me some suggestions! 

The list may have some far fetched items some boring items but it's mine and I make the rules. My theory is it can't hurt to vocalise/visualise these things and by putting it out there it might start happening! 
As I've withered on a lot, I'm going post my list separately, either tomorrow or Wednesday, so keep a lookout for new updates. 

PS thank you so much to Linda Jane who wrote a comment on my last blog, your words made my day. What an incredible, selfless lady you are. Much love to you xxx