Have heard from the hospital and providing there isnt an emergency that needs the bed, I will be going in on Monday to start Nasal Gastric feeding (learning how to pass a tube up my nose and down my throat so I can feed overnight). I am glad that things are going to start moving forward but I am also scared stiff and wish that I could shut myself away and not have to deal with any of this.
I dont know how long I will be kept in for, it depends on certain factors. The sooner I am able to get the tube down myself (ill be doing it myself from the beginning) the sooner i can start feeding, so thats a big hurdle. Once the tube is down, the feeds will be introduced very slowly to see how I tolerate them. My stomach is very sensitive so if it doesnt agree with me or we go too fast then I will end up feeling/being sick, stomach aches etc. If we find that im unable to tolerate certain feeds thn we can try different types etc to see what suits me, we will start with the highest calorie feeds first.
So it all depends on how quickly these things get sorted and how well i respond as to when I can come home.
I do think this is going to help me and like I said to my mum, at the moment I am wishing that the transplant call wouldnt come. This sounds bad but when youve been told so bluntly that at my current weight I would be unlikely to survive the op, it takes away that want and hope you have. Once I start gaining some weight I know that I will start t feel more reassured again.
Probably wont update while Im in as not sure what will be happening but if i can I will. Much love xxx