4.02.2009

hospital date

Have heard from the hospital and providing there isnt an emergency that needs the bed, I will be going in on Monday to start Nasal Gastric feeding (learning how to pass a tube up my nose and down my throat so I can feed overnight). I am glad that things are going to start moving forward but I am also scared stiff and wish that I could shut myself away and not have to deal with any of this.
I dont know how long I will be kept in for, it depends on certain factors. The sooner I am able to get the tube down myself (ill be doing it myself from the beginning) the sooner i can start feeding, so thats a big hurdle. Once the tube is down, the feeds will be introduced very slowly to see how I tolerate them. My stomach is very sensitive so if it doesnt agree with me or we go too fast then I will end up feeling/being sick, stomach aches etc. If we find that im unable to tolerate certain feeds thn we can try different types etc to see what suits me, we will start with the highest calorie feeds first.
So it all depends on how quickly these things get sorted and how well i respond as to when I can come home.
I do think this is going to help me and like I said to my mum, at the moment I am wishing that the transplant call wouldnt come. This sounds bad but when youve been told so bluntly that at my current weight I would be unlikely to survive the op, it takes away that want and hope you have. Once I start gaining some weight I know that I will start t feel more reassured again.
Probably wont update while Im in as not sure what will be happening but if i can I will. Much love xxx

5 comments:

  1. much admiration for being able to swallow that tube, but if anyone can do it it would be you! before you know it you will be packing on the pounds and your new lungs will come along and you will just breeze through it all! we here will be saying lots of prayers and sending you wonderfully great thoughts that your tummy will be able to handel the high-cal stuff. keep your chin up, and remember we will all be behind you.
    Laura

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  2. just a note to let you know i will be thinking of you and sending lots of prayeres that everything is going well for you this week.
    Laura

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  3. i hope all is going well with you and your new tube! lots of those big ol fat calories all hitting the good spots. praying for you to have a peaceful and productive week.
    lots of hugs, hang in there!
    Laura

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  4. Hope all goes well for you. Everyone at Brown Towers wishing you the best.

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  5. Happy Easter! I hope you are at home and recouping and getting ready to eat lots of fattning chocolate
    ~still praying
    Laura

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