I have been getting loads of tweets on twitter at the moment and many new followers on my blog so thought I would seize the opportunity to say hello and let you learn a bit about me!
First port of call would be here my very first blog post that tells you all about me.
Of course that was 2 years ago now so things have changed a bit so I'll give you an update! Sadly the main thing in my life, needing a transplant hasn't changed and I (and so many others) are very much in need. I have been waiting for 2 years and 2 months for my double lung transplant now and things are a real struggle for me. I cant begin to explain how much it effects my life but it does in every aspect. I get desperately out of breath, use oxygen 24/7 and a wheelchair when i go out. I need assistance washing my hair, walking about, getting dressed and thats just the tip of the iceburg. Almost every normal task for any other 22year old is extremely difficult for me and my life is virtually on hold, I have no independance and all the dreams and energy pent up inside me have to remain there, for now. My life could be changed unrecognisably by a transplant I would be a fit heathly 22 year old again, able to plan a future that at the moment is not very certain. At my transplant assessment (April 06) I was given 2 years life expectancy without a transplant....im now living on borrowed time.
I miss everything that my situation has taken away from me, mainly my trips to the theatre (my passion) and being able to just be who I want to be! But I am also incredibly lucky to still be here fighting on! I am determined to do all I can to raise awareness of organ donation for myself and others.
Please consider signing the donor register to help others live.
Expect more updates soon, and thank you so much for reading! Hope you'll enjoy future posts. x
Please feel free to ask any questions and leave me comments, lovely to have you on board.
PS I will be on BBC 1 talking about organ doation tommorow! Eek! nervous!