Even though I only posted a week ago quite a few things seem to have happened so thought I'd write an update while I had time. I'm starting my new literature course this week and spare time is going to be at a premium! I must admit I am really daunted by this course, it's called "the nineteenth century novel" and from what I've read so far is pretty hard going. It really is so difficult to study now compared to when i first started, I have the constant niggling thoughts that transplant could come at any time and stop study which in turn would lose me work and money, not anything in the grand scheme of things but irritating. Same deal with sudden drop in health. I have lots of times when I get too tired, sick etc to work and then have to catch up, plus study time is greatly restricted by my treatment regieme. None of this helps with feeling daunted by it all! At the same time am i prepared to let CF take one more aspect of my life out of my control? Hell no! It definately doesn't do for me to have too much time on my hands so I push myself pretty hard (often to the point where I take on a little too much).
I have a couple of good pieces of news. First of all last time I posted I said that I had appealed my last course result and as a mistake had been made it was being reviewed. Last week I heard that my result had been changed from a grade 2 pass to a distinction! I am a very happy bunny about this as I was so close to this grade and now it has been reconsidered I've finally got it. It just shows that you should always fight for what you think is right. This now means that I am on target to achieve a 1st at degree level, although this is a long way off yet.
Second piece of good news is that last week I had my iron infusion. I was in as a day case and the nurses on the ward were lovely, extremely kind and friendly. I am (as readers know) not great with needle and canula's but this time it went in first time with no problems. The infusion went through and after observation to make sure I had no reaction to it I was free to go. I felt pretty tired and giddy from the exersion but otherwise fine. I'm so glad that I haven't experienced any gastric problems like I did on the tablets as that was horrendous.
Third piece of good news it that it looks as though my little blog will be getting a bit of a make over! I was asked if i would like one by a lovely team who offer this service to those who blog for therapy and i jumped at the chance. It won't be underway for a few weeks yet but I am very excited about geting my blog made to look all pretty! I can't give anyway any design secrets but keep a look out and hopefully you will see the new look appearing in the future.
I'm up to Harefield (my transplant centre) next Wednesday for clinic, which although it's good to keep in touch with the team will also result in a long and exhausting day. Healthwise I am the same as usual, feeling tired and breathless doing very little and despite being on maximum bronchiodialtors (for opening the airways) I am still very closed down and generally struggling rather a lot. Here's hoping that call isn't too far away. It's nearly a year since the last one and I think I'm due another don't you?