Quick blog to let you know how dreaded clinic went. In actual fact, (I think I have all your positive thoughts to blame) clinic went pretty well. My weight was still 44.2kg the same as when I did it in the week, but was up on my last clinic visit. My lung function had actually improved a tiny bit, not enough to matter an awful lot but I am still very grateful to have improved slightly. Everyone seemed pleased with me, I saw a registrar and they were really impressed that Im this far down the line and doing well. Next appointment in 4 months! (YAY!!!!)
The slightly downside was a conversation with my gastric dr, he was lovely as always but had nothing new to help with my problems and had some thoughts about feeding immediately post transplant. Also the fact that the clinic was packed and everyone had hacking coughs wasn't good. Obviously no one can help it, but it does mae you feel very vulnerable when you are relatively well and at risk of picking something up.
All in all a better day than I could have hoped :)
It took us 3 hours to get home which was a bit rubbish after a long day. We sailed through London but got stuck in traffic nearer to home and it was total gridlock. Still we got there in the end!
Thanks to everyone who thought and prayed for me, Its very very uch appreciated! Especially Laura who left 2 comments wishing me well, hope your feeling better now and enjoyed Disney when you went? I tried to email you to say thank you but couldn't find an address or contact details.
Anyway thats my visit in a nutshell, I'm so pleased its over and that it went well. Hope you all have a good week, I'll update again soon xxxxxxxx