Its just a short post. It has been the worst day of my life. My weight was up at clinic but only a very small amount.
My tx dr has said that I cant wait anymore I need to either be fed by PEG feeding directly into stomach ,(or nasal gastric) or else I will have to be taken off the list and in his words, “live what time I have left”. I haven’t stopped crying since and my head is just unable to think.
I am absolutely petrified of having a PEG. I am bad enough with having a canula in my hand but the thought of a tube into my stomach just makes me physically sick. Plus my liver disease makes it risky and may not even allow it. My liver dr has already said that he would not want to take this route, but my Translant hospital say if my liver is that bad then I would be taken off the list anyway.
I would much prefer a nasal gastric tube but my hospital seem wary to do this as they have no one to train me to do it.
I havent stopped crying and this is the most difficult decision I have ever come to. A PEG is my worst nightmare but am I ready to give up the fight? I dont think i am.....but dont know if i have the strength.
I will be going to see a dietcian and stomach dr on friday and will try to let you know then.
At the moment I've not got much faith in prayers but would still appreciate them.