Owwwwww! shouted as loud as possible would be the best way to describe this week.
On Monday I woke up feeling fine, did my physio and then got back into bed to do one of my nebulisers just as usual. Completely out of the blue I had a stabbing pain and tightness gripping the lower left side of my back, it was so bad I screamed! My mum rushed in and tried to massage where it was hurting but I couldn't even bear to let her touch me. I became really worried because the pain was so severe and I had no idea what was happening. My mum phoned the GP who agreed to do a home visit.
An hour or so later the pain was just as bad and the GP arrived. She was absolutely fantastic, and said that in my position healthwise we had done the absolutely right thing in calling her. She tested my urine to rule out any infection, listened to my chest, took my pulse and felt my tummy and back. She concluded that the large major muscle in my back was in spasm, it felt very tight, tender and raised. I was happy to at least know what was going on and was advised to use heat packs, baths and pain killers to ease the discomfort.
I have liver disease because of my CF and therefore can't take asprin or ibroufen based drugs, so used paracetamol and constant heat packs. But by the evening I was in complete agony. I could hardly move, was crying with the pain and being very sick because of the intesity of the pain. We ended up at the emergency dr's at 11.30pm. They again tested my urine which was clear and agreed that it was definately spasms, they prescribed some heavy duty pain relief and anti spasm tablets.
When we got home I was exhausted but didnt get much sleep at all.
The tablets made me vomit constantly and the pain has been unbearable. To cut a long story short I managed to get some new painkillers which were better but it was only on Thursday that we cracked the dosage problem to provide me with some proper relief. My sister works with a physiotherapist and she kindly came to visit me to she if she could help. She has lent me a TENS machine which is brilliant and has really helped to dial the pain down.
As you can imagine it has been a very stressful week again. Both me and my mum have hardly slept each night, I am still in pain although its less than it was. I feel really tired and have been virtually bed bound all week. I'm quite unsteady on my feet due to the pain killers and once again my tummy has taken a severe battering with violent sickness and extreme acid production due again, to the powerful drugs in my already delicate stomach. Last night I was sick with pure green acid that burnt all my throat mouth and nose. I also have big scratches on my back from the boiling hot water bottles I've been using (they were the only relief i had while sorting out dosage). Once again all this has been a huge blow to my weigh gain hopes, (I havent weighed this week) and my general mood.
I'm hoping things are starting to improve now,but it is very slow progress. The doctors say it can be up to a few weeks for this to ease. I'm sorry if I haven't been good at replying to texts , messages etc but it has been so rough.
Hope to have better news next time.